Hitting the Wall.... And Then Climbing Over It!

We have 77 days left in our campaign on indiegogo-  http://www.indiegogo.com/ZackGow?a=740312 Donations, through the site, have started to dwindle, so I continue to look for new and exciting ways to advertise.

In visiting the website for Yale's Center for Dyslexia & Creativity , I came upon a list of successful people who have dyslexia. Many of them didn't have their dyslexia diagnosed, until late in life. Largely, they seem to see this as a good thing- their perseverance, creative thinking, etc. helped make them the people that they are today. I think that it is wonderful that they were able to overcome the difficulties that their dyslexia presented!

On the other hand, I don't want Zack to be defeated by a system that, currently, does not provide appropriate accommodations for students with dyslexia. If he becomes so disheartened that he gives up altogether, I will be heartbroken. SO, I am going on another letter writing campaign. I will be sending personalized letters to each of the individuals on that list, provided I can find their contact information, and asking them to spread the word about Zack's situation and need.

My decision to do this was reaffirmed when I saw the following piece on NBC's today show...

Couple Building American Palace

If you don't have time to watch the video, here's the blurb:

New documentary “The Queen of Versailles” follows a Florida couple, David and Jackie Siegel, who set out to build the biggest house in America when the recession caused their opulent lifestyle to crumble. Jackie and filmmaker Lauren Greenfield talk about the surprising turn of events neither of them expected.

This feeds right into my "life isn't fair" issue and the fact that there are some in this country that have more money than good sense. I know that the wealthy have no obligation to do charitable works and there are, certainly, charitable organizations that would benefit more than "just" Zack from funding. However, I am disheartened by the fact that Today believed that this story was newsworthy. And, if you didn't watch the video, you will be relieved to know that the couple has recovered and are hoping to sell the home, upon completion. If they are unable to sell it, then they will just have to suffer through and live in it. The house with the bowling alley. Sad.

Really, I hope that their take away from this is that "things" will not bring them happiness, especially when times are tough! And, to that end, I am off to write some letters!

Defualt.... Default.... which one looks right?

Over this weekend, we have had the pleasure of hosting extended family for the wedding of my brother in law, Jay and his lovely bride, Claire. It has been an uplifting celebration and we are thrilled to have been a part of it. Even more thrilling, however, is the opportunity to watch Z interact and  his cognizance of spelling. "Spelling" you say? Yes, spelling. I don't recall how it came up, but over the weekend, Z tried to spell "default." His father stopped him, mid-spell, when he made an error, and corrected him. Z, looking dubious, walked over to a piece of paper and wrote the word, as his father had spelled it, and then substituted in his original spelling. Once he had done that, he was immediately able to apply the skills he's gained from RL at Gow and recognized that his father was, indeed, correct.

This might sound inconsequential to you, but, for him, it is a huge milestone. He may not be able to hear the sounds, but he can look at the word and, using the "rules" from RL, he can figure out where it's wrong and how to correct it!

And, THAT is what a GOW education will get you!

Ready for a Challenge...!....?

In one week, Zack will have finished his first year at The GOW School, which specializes in language based learning differences. In one year, we have watched him grow from a self-conscious, unsure, insecure boy into a confident, well-rounded, smiling young man. He is so proud of what he has accomplished (and rightly so) and no longer thinks of himself as a stupid kid who just can't learn.


If you've ever been in our position, you know what I'm talking about. Watching your child struggle, day in and day out, through 7 years of academics, breaks your heart. Yes, we are lucky because he is healthy and able bodied. I know that things can always be worse. But, as a Mother, it is gut wrenching to watch your happy, bright boy slowly lose self-worth because of something beyond his control.


For parents of an LD child, the "system" can be difficult, at best. Well-intentioned educators, psychologists and administrators offer one-stop-shopping solutions for an LD child, regardless of what they really require. This is not their sinister attempt to deny your child access to resources- although that is certainly how it feels. School systems, simply, have not recognized that language based disabilities make up the majority of their LD population.


Dyslexia is neurobiological in origin. Schools refer to Dyslexia an SLD (Specific Learning Disability) and define a Learning Disability as a disorder in one or more of the basic processes involved in understanding spoken or written language.  It may show up as a problem in listening, thinking, speaking, reading, writing, or spelling or in a person’s ability to do math, despite intelligence. The National Institute of Health's studies show that 80% of students with an LD have a form of Dyslexia, yet only one in ten students with Dyslexia get appropriate special education services. How is that possible that 80 students out of 100 have dyslexia, 8 of them are serviced with appropriate programs while the other  72 are placed in programs that don't address their needs, or ignored completely? Why is the majority of a school's special education funding devoted to programs that are destined to fail? It's mind boggling!


In our case, Zack has an above average IQ, but great difficulty matching sounds to symbols. When something is presented to him, orally, he remembers things very well. However, he has so much difficulty with decoding text that meaning is lost; Once he gets through decoding each word, he has forgotten what the string of words said and can't tell you anything about what he has read.  He also has great difficulty with note-taking because he does not have automatic recall of spelling, and can't reasonably sound out a word/string of words while continuing to listen to the teacher. In addition to those struggles, he lacked executive function/organizational skills. One teacher referred to him as a "nutty professor" running down the hall with papers appearing to jump from his being as he moved.


So, once we realized that his school was unable/unwilling to implement a program that would be effective, we elected to move Zack to Gow. The tuition at Gow is not cheap. It is, in fact, quite expensive and, for most families, unattainable. For Zack's first year at Gow, we took a gamble. We chose to spend the boys' college funds on ONE year at Gow, in hopes that we would be in a better financial situation, or eligible for more aid when the next year rolled around. Within a month, we knew that our gamble had paid off. Unfortunately, the return on that investment is not a financial one and we now face paying for another year, and then another after that, etc. with the goal of keeping him there through High School graduation. 


I am humbled when I contemplate finding the money for another year. The school has been generous with financial aid, but the balance owed would still be half of my net income. Our families have also been very generous, but they are also of limited resources. As I macabrely joked with admissions; I am running out of rich relatives who might leave me an inheritance. 


So, this is where I need some help, folks. I cannot bring myself to ask people for money, directly. However, I CAN bring myself to ask for fundraising ideas, or contacts/connections to people who might be able to offer help, in any capacity, in our endeavor to keep Zack where he belongs. I would do anything for him, and am at a loss. Please repost this blog on your wall so that your friends see it and pass it on to their friends, etc. With that act of good will, I have to have faith that we will be connected to someone who can help. Heck, we will even sell "ad space" on Zack's forehead for the right price! (kidding!)


Please consider helping us with a posting chain. It won't cost anything and has the potential to make a HUGE difference in a young man's life.


xoxo
Becky